Melissa's Blog Entries Archive

Roller coaster ride

Monday, September 14th, 2009

Duh?  I forgot!  After chemo comes the roller coaster ride.  Yes, celebrate the up and hold on for the down. 

I was greeted stopped abruptly by the welcome desk today upon entering the hospital.  Yes, it’s FLU season and they don’t want any children in the hospital.  I know, it makes sense.. but my heart was broken.  Kate is my side-kick M,W,F.  Where I go, she goes.  She is a pretty good trooper (we did a 3 hour lunch the other day, she slept for half), so I thought we could do a long day today with Morgan.   WRONG.    We negotiated and bypassed the “guards” to make it to the fourth floor.  We didn’t visit long, he doesn’t feel good; headache, fever, worn down and he needs to sleep.

Please keep Morgan in your thoughts and prayers. 

Ideas for prayer:

  • * chemo aka PacMan is eating the cancer
  • * Morgan organs and body are protected from chemo
  • * He has strength to fight and hope for a future
  • * any existing infection goes
  • * protection against further infection
  • * Morgan would have peace, comfort, rest…..
  • * Kasha would know she is loved, see and feel supported and encouraged (she’s incredible)

I’m sad and broken today.  It’s the same feeling I had last round during the aftermath of chemo.  I’ll celebrate the fun, happy memories of the weekend, meditate on scriptures that bring me comfort…. and well maybe some ice cream too.

Celebrate!

Saturday, September 12th, 2009

Morgan is doing well.  In fact, he had a visit from Dr. Isaac’s this morning who said Morgan looked great.  The word is he will go home tomorrow.

Last night, we celebrated Mom’s 60th birthday and ended the party at the hospital with Morgan.  The special surprise of the night~ Mark came into town with his friend and shocked us all.   We are planning to do a ”Strub Tour”  tomorrow.  Strub Tour? Yes, we gather the Strub’s and take a tour of our past.  We drive out west and visit our old homes, stores, the parks, O’Neil pool, schools, Grandpa’s house and anything that was important to us…we laugh and reminisce.

I love it!  It makes me happy just thinking about spending the time with my brothers and plans for tomorrow.  :)

Thanks for your thoughts and prayers this week~ we’ve had miracles!

:)
Happy day!

Ps. I’ll attach pictures soon!

…he is good

Thursday, September 10th, 2009

I wanted to write a quick update and let you know that this week has gone much better than we anticipated.  Morgan has been in good spirits, no sick, little pain, resting and absorbing the love.      I’d call it answered prayers  : )

The girls and I got to visit with him a bit tonight.  We did a DQ run for his large chocolate milkshake and brought some treats for ourselves and the nurses.  When you tally Morgan, Kasha, my three girls and I~ we had a mini ice cream social.   It’s fun to bring the girls, they love Uncle Morgan & Auntie Kasha but they are talkative and like to explore.  It gets to be loud so we spare Morgan girl drama and just stay for short visits.

On a personal note: I still feel blessed!    This is not what I planned for my family.  These times are tough, but I know God and trust him.  I feel his peace, I am comforted by his promises, and I see him at work and feel him at work.  I really should make a list ….     Oh, taste and see that the Lord is good!  Blessed is the man who takes refuge in him!  Psalms 34:8

I am planning on visiting with Morgan in the morning.  I hope to take some notes and update you on some of the latest details so you are in the “medical” loop and know the prayer requests.

Tomorrow is Morgan’s last day of chemo and my Mom’s 60th birthday!   We have much to celebrate!

: )

Pacman

Tuesday, September 8th, 2009

pacman“Think Pacman”  we keep reminding him.  It’s important to have a visual- Pacman is ours.  Pacman is chemo, the dots and ghosts are buster and the busterettes. 

Today was day 2 and all seems to be going fairly well.  I tell you that from my view of course.  What I see is that he is brave, strong, fighting, believing, hoping and doing it.  He also hasn’t been sick, which is something I know he dreads and we don’t want either.  

I know it’s very different for Morgan- his view is life changing.    I am still amazed at what I don’t know.  I really can’t grasp it all.  I feel like I’m there with him and there for him, but I had some realizations today that remind me that I just scratch the surface and am so far from knowing all that is really going on. 

Thank you for checking in and being here.  Please continue to pray that the Chemo does all it’s BAD to the cancer and that his organs and body are protected.  Also for peace, comfort, protection & HOPE!

: )  Thank you ~Team Morgan~for faithfully following our champion.

Chemo part 2

Monday, September 7th, 2009

Morgan is back at John C. Lincoln for chemo round 2.   Please pray- this is a more specific dose for Neuroblastoma and we have been told that chemo #2 can be a doozy.   I’ll have more information tomorrow.  Thank you for your thoughts and prayers.

Please leave a comment or word of encouragement for Morgan.

Quiet

Thursday, September 3rd, 2009

We’ve been quiet.  It’s been a hard week and sometimes I just don’t know how to put my thoughts and feelings into words.    I do know that I am glad you are here and walking this with us.  It’s so comforting to know that family and friends are thinking of Morgan, praying, and just here.  Please don’t go away, we need you.   I got a personal note today that reminded me that friends are here and they want to know what’s going on and how they can pray and be here for Morgan (and us, the family). 

Tonight, I just wanted to write a quick note and let you know Morgan is home, resting and getting ready for chemo next week.  He had an infection, so they are treating it with an antibiotic and wanted to make sure he had a full recovery before they start chemo on Monday.

It’s been a rough week.  The reality of it all, is overwhelming.

Freedom…

Thursday, August 27th, 2009
I visited with Morgan tonight. It was good to just be. We talked, walked through some memories and watched his screen saver pass through pictures of his traveling days.

I mourn Morgan’s loss of freedom. His carefree days of being able to go, get out there, explore, and meet up with like-minded travelers on their own journeys. I do admit it always scared me when he left. I didn’t understand it or appreciate it the way I do now.    For now, it has taken a backseat- and I am saddened by it.

I’m broken to my core about Morgan having cancer, but I can’t fix this one. I am committed to walk this with him, be there for him- support, encourage and each day do whatever I can.

I am somewhat ashamed to admit it, but in discovering Morgan’s cancer- I have come to a new level of living.  Before summer, I had participated in a study, “search for significance”. In doing that study, I grasped truth with my heart. I knew it in my head, but my heart finally GOT it! My walk with my God and savior is forever changed- such a new freedom in living.

Discovering Morgan had cancer- has stirred me even deeper.  I can’t wait to live my legacy, do it now!  I woke up, I’m more alert and alive. I stepped outside of a nice, neatly kept, functional box… to live.  My world is bigger, bolder, better, and most definitely more FUN.  I made a list and I am not waiting anymore.

All this to say- Morgan has inspired me.  Again and again… I am not going to waste this.  In turn, I will continue to do what I can to come along side Morgan and encourage him to PRESS ON, never give up and finish his race!   Morgan has a vision, talents, a mission and goals- I want to help him finish. 

After all, that’s one of the treasures of family- belongingand doing life together.

I love you Morgan!

Ps. Check out Morgan’s traveling pictures on his facebook page and his traveling stories at www.digihitch.com.

Recovering

Tuesday, August 25th, 2009

I just talked to Morgan for a quick minute- he is out and recovering in his room.  Mom will spend the night with him and we are hopeful and praying that he gets some sleep.  The pain has been unbearable and has kept him up for several nights.  In fact, I can’t remember the last time he told me he slept well.  The steroids and pain have really caused trouble.  He’s in need of some good sleep tonight.

I found more info on the procedures of today.

Intrathecal Pump Implant
– www.spine-health.com/video/intrathecal-pump-implant-video

Having a Ureteric Stent
– www.bui.ac.uk/PatientInfo/ureterstent.html

PS.  Thank you for your prayers today!

Why wait? Let’s PRAY today!

Tuesday, August 25th, 2009

A sweet girl from high school sent a note to me today and recommended we do a day of prayer for Morgan.  I wrote back and said we had “circles” of prayer but what a great idea to designate a day where we could all agree to pray.  I’d work on it, I turned off my computer- then thought…. why wait.    Today is the day! Let’s do it!  or Git-R- dun as I say.

Today is the 25th, Morgan was born on the 25th day of September.  The 25th is a great day to start.  Last I heard, Morgan was scheduled for surgery today at 5:00 p.m.  to replace the existing kidney stints, new catheter, possible pain pump and… not sure what else.

Please agree with us and pray for Morgan:

  • peace, comfort and hope for Morgan
  • pain management
  • wisdom for the Doctors treating him, discernment in what to do next
  • precision in surgery
  • Morgan would be drenched in prayer, feel loved, supported and encouraged
  • Kasha and Morgan protection for their relationship and a growing love and support for each other in these HARD days.
  • Die Buster Die
  • Morgan would see & feel God in a new way-
  • anything else that is heavy on your heart.

Please feel free to leave comments of support,  encouragment or something you’ve prayed for him.

Thank you, Thank you!  For walking this with us and agreeing to come along side us with your support and prayers

Excruciating PAIN

Monday, August 24th, 2009

Morgan is our gentle giant.  If you’ve met him, you know his stature is tall and broad and his hands are huge.  To know him is to love him.  He’s got a gentle, kind way about him. He’s got a heart for hurting people and puts the cares of others often before his own. What you may not know is he has a high tolerance for pain.  I believe that is one of the reasons “Buster” went undiagnosed for so long. He’s had BIG PAIN and made little noise for a long time.

Saturday night was an adventure.  Morgan loves pizza and we decided to get the “kids” together and go out to a hot Phoenix destination: Pizzeria Bianco. The lines start forming at 4:00 for an opening time of 5:00.  Nick and Mark arrived at 4:15 and were the 60th in line.  The doors opened at 5:00 and, when they put their names in, where told we would eat between 7 and 7:30.   I arrived about 6 and Morgan and Kasha were there about 6:30.

We sat out on the patio to the next-door bar and took in the quaint neighborhood sights.  The old houses that line the street and the way it is blocked off- you naturally start to slow down and just absorb all that surrounds you.

We were seated at 7:00 and had one of each pizza- THE BEST PIZZA EVER!!!    We will definitely have to go again.   We were all in good spirits and didn’t want the night to end so we headed for the world’s best Gelato.  We were enjoying our time together and taking it all in as we knew the week ahead would be another hard week and we would look back at these times for encouragement.  (That’s what I do, anyway.)

Morgan mentioned he wasn’t looking forward to chemo, but he had some new pain and that he knew there were some things they would need to do and he may be in there for a while this time.  I was sad, it scares me… but I know that he is in good hands and we really are dealing with great Doctors and specialists.

We walked back to the car to end the night.  Morgan and Kasha went their way and we went home.  I was in bed by 11:00.  Morgan and Kasha had it different…

Morgan started a fever and his pain level was 13 (scale 1-10).  He was beside himself in agony and Kasha took him to emergency.  There are a lot of details between midnight and when I got a call at 6:00 a.m.  Kasha said Morgan had been admitted to ICU at midnight and was running a 103 temp.  They thought it was pneumonia and were trying to manage pain along with administering antibiotics.  It turns out it was a urinary tract infection…???  Hello, um that’s way different, miscommunication somewhere.    I am sure I don’t give the story justice, maybe Morgan will give more details later.

•••

Last night, Sunday, Aug 23,  Mom says worst night at hospital.  Morgan was beside himself in pain, screaming and just in agony… excruciating…. so hard to witness.  Little to no sleep for both of them.

Today, Monday, Aug 24.  They were able to double his dose of pain meds and administer it every two hours rather than four.  There was discussion of having a “pain pump” put in..  and maybe Chemo Wednesday. Tuesday he is scheduled to have his kidney stents replaced @5 pm.  YUCK.  First, they take the others out, then go in again with new.  Yikes!  If the OR is available they will put the pain pump in then.  I’ll have to get more details later on that.  I think if all goes well the 2nd round of chemo starts on Wednesday.

This is the latest- as I know it and for now…

Please pray for Morgan.