Archive for the ‘Cancer-related resources’ Category

twenty-10 and new beginnings

Saturday, January 9th, 2010

Happy New Year.  Out with the old.  In with the new…

I was catching up with old friends tonight and, of course, “What did you do on New Year’s Eve?” inevitably, predictably came up.  Reflecting, the tone this NYE seemed less decadent than in years past.  In New York’s Times Square, the prior lighted ball was retired in favor of a much lower energy “green” ball.  It was toned down.  Here in Austin, a lot of people were sick- myself included.  So, naturally, many people here toned it down.  People across the nation that I have talked to admitted, unabashedly, to being asleep when Father Time gave up the ghost.  It seems to me that there was a general ho-humness around this particular calendar roll.  Did you have a similar experience?

2009 took a toll on us, I think.  Prior years played out like one big, elongated NYE bash where revelers partied like there would be no tomorrow.  Few worried what the tab had run up to because it wasn’t real money- it was credit.  Then the hangover came.  2009.  Like every dutiful hangover, it reminded us why we can’t act that way, do those things, be “that guy,” etc.  We laid around at the end of 2009 re-evaluating priorities, making resolutions and vowing to change behaviors.  Maybe the toned down start of 2010 wasn’t just one night, but an indication of the flow of the coming decade.  And I say hooray.

In these pages we’ve talked a lot about re-evaluating priorities.  It’s times like these that we remember to live.  And love.  We learn that every day can be a fresh start.  Even every moment or as often as you can change a thought process or behavior for the better.  While these new beginnings might not always be the start of something everlasting- they are a better way to spend that day or that moment.  The effort and the hope is honorable.  The strength to live well is teachable.  The tenacity and perseverance is contagious.

Morgan flies to Houston on Monday to meet with the specialists at MD ANDERSON www.mdanderson.org.  His amazing wife, Kasha, will be with him as well as Melissa and myself.  Morgan’s level of effort and strength that this journey displays is awesome.  Nothing about making this trip is easy.  It’s a lot of travel.  But not the kind Morgan is famous for.  It’s an act of bravery and tenacity, and I admire it greatly.  2010 promises the hope of a new year, new treatment, new beginnings.

Please think of us this week as we search for answers as difficult as the questions themselves. 

-Mark

Recovering

Tuesday, August 25th, 2009

I just talked to Morgan for a quick minute- he is out and recovering in his room.  Mom will spend the night with him and we are hopeful and praying that he gets some sleep.  The pain has been unbearable and has kept him up for several nights.  In fact, I can’t remember the last time he told me he slept well.  The steroids and pain have really caused trouble.  He’s in need of some good sleep tonight.

I found more info on the procedures of today.

Intrathecal Pump Implant
– www.spine-health.com/video/intrathecal-pump-implant-video

Having a Ureteric Stent
– www.bui.ac.uk/PatientInfo/ureterstent.html

PS.  Thank you for your prayers today!

Cancer- funny haha or funny strange?

Monday, August 17th, 2009

I subscribed to Newsweek on my Amazon Kindle today so I can get the latest stories delivered to me. Funny that my first read would be a story about 20- and 30-somethings with cancer, adapting with humor. I guess it makes sense to me that younger folks with cancer would take a very different look at the situation, less inclined to be resigned to the diagnosis and more likely to rail against its absurdity.

“You’re 35 and you’ve got cancer? That’s funny…”

“How do you mean? Funny haha or funny strange?”

“Oh, I mean it’s strange. Or weird. Can I say ironic? Because here you’ve been a smoker all your life and this particular cancer has nothing to do with that, does it? You’re chromosomes were f*cked since the day you were born, weren’t they?”

“Yes, it seems so. I guess that’s funny.”

Sugar feeds cancer?

Sunday, June 21st, 2009

Here I am in the hospital; just woke up from a nap and learned I’ll be having spaghetti for lunch. My friend, Lance, loaned me his laptop, so I’m able to entertain myself with music and internet. I think I’ll watch some episodes of Saturday Night Live on hulu.com later.

Lance sent me a link to a few articles about sugar and cancer today. My mother has been telling me lately, “Remember- sugar feeds cancer.” When I told Lance this he looked into it and found this article from menstuff.org on cancer and sugar. Also, this from Wellness Directory of Minnesota- Cancer Loves Sugar.

I was going to have someone bring me a large chocolate milkshake today, but I guess I’ll go without. Buster is big enough!

So, I’m doing well after my kidney procedure yesterday. Peeing has been painful as hell- especially that last bit, when the bladder gives an extra push. That’s usually when the blood drips out, but I’m told that’s typical for a little while. Also, I have very little bladder control, so I have to be on the toilet (or have the portable urinal in place) within 5-8 seconds of feeling the urge to pee or I just go wherever I happen to be. I learned that the hard way last night when I wet myself good on the way to the bathroom, struggling with my IV stand along the way.

This afternoon I’m having a bone scan done. A technician was already in here earlier to shoot dye into my IV so they could have contrast for the scan. “Drink plenty of fluids,” they say. OK, but damn I hate to pee!

Ewing Family of Tumors info

Thursday, June 18th, 2009

My brother Mark sent me this link yesterday:

National Cancer Institute – www.cancer.gov/cancertopics/types/ewings/

It details everything about Ewing’s Sarcoma, my form of cancer, and has a ton of useful info on dealing with cancer, its treatments and drug side effects. Exhaustive statistics, too.

Mark also told me he’ll be getting a Nintendo Wii.
Whee! We’ll be able to play each other over the network (he’s in Austin).
Just like old times, but he better let me win once in a while.