Comments on: MD Anderson part 2 http://cancercaw.com/blog/family-friends/md-anderson-part-2/ Morgan's blog about cancer, chemotherapy and where to go from here. Wed, 22 Sep 2010 16:00:29 +0000 http://wordpress.org/?v=2.9.1 hourly 1 By: Melis, Max's Mom http://cancercaw.com/blog/family-friends/md-anderson-part-2/comment-page-1/#comment-193 Melis, Max's Mom Mon, 25 Jan 2010 15:01:32 +0000 http://cancercaw.com/blog/?p=612#comment-193 I too, found your post through google alerts. I'd like to direct you to the the online community of www.ACOR.org (american cancer online resources). Sign-up for the N-Blast list. You make a post there and receive a lot of helpful information from other NB patients (there ae adult patients on there), as well as parents who have a lot of info on this disease from all over the US and beyond. Don't be too hard on MD Anderson - when a case of NB comes through the doors everything changes (i.e., your appointment). There's too much at risk. MD Anderson is one of the best places you can be. They are known throughout the NB community. Best - Melissa Mikulak I too, found your post through google alerts. I’d like to direct you to the the online community of http://www.ACOR.org (american cancer online resources). Sign-up for the N-Blast list. You make a post there and receive a lot of helpful information from other NB patients (there ae adult patients on there), as well as parents who have a lot of info on this disease from all over the US and beyond.

Don’t be too hard on MD Anderson – when a case of NB comes through the doors everything changes (i.e., your appointment). There’s too much at risk.

MD Anderson is one of the best places you can be. They are known throughout the NB community.

Best – Melissa Mikulak

]]> By: Robert http://cancercaw.com/blog/family-friends/md-anderson-part-2/comment-page-1/#comment-191 Robert Tue, 19 Jan 2010 20:00:45 +0000 http://cancercaw.com/blog/?p=612#comment-191 I ran across your blog (from google alerts/neuroblastoma) and want to commend Dr. Peter Zage to you. My daughter, who is 24 y.o., has Stage IV NB and was treated by Dr. Zage in 2002 during his residency at Children's Memorial Hospital in Chicago. I have spoken to him since about treatment options at M.D. Anderson and will almost certain speak with him again. Right now, Anna is flourishing on a new medicine (an ALK-inhibitor); if Morgan can have "Buster" tested for a genetic mutation I would recommend this treatment. Peter will know about it. He also has some other great options (that we may yet try), including the Aurora Kinase inhibitor(?). He'll know. Morgan: you can count yourself a part of a very proud, exclusive fraternity (that no one would want to join) -- adults with NB. Check out Anna's story at www.annabanana.org Hoping the best for you, -bob (for Anna) I ran across your blog (from google alerts/neuroblastoma) and want to commend Dr. Peter Zage to you. My daughter, who is 24 y.o., has Stage IV NB and was treated by Dr. Zage in 2002 during his residency at Children’s Memorial Hospital in Chicago. I have spoken to him since about treatment options at M.D. Anderson and will almost certain speak with him again. Right now, Anna is flourishing on a new medicine (an ALK-inhibitor); if Morgan can have “Buster” tested for a genetic mutation I would recommend this treatment. Peter will know about it. He also has some other great options (that we may yet try), including the Aurora Kinase inhibitor(?). He’ll know. Morgan: you can count yourself a part of a very proud, exclusive fraternity (that no one would want to join) — adults with NB. Check out Anna’s story at http://www.annabanana.org

Hoping the best for you,

-bob (for Anna)

]]> By: Carla Strub http://cancercaw.com/blog/family-friends/md-anderson-part-2/comment-page-1/#comment-190 Carla Strub Tue, 19 Jan 2010 17:55:17 +0000 http://cancercaw.com/blog/?p=612#comment-190 How awful, don't let it discourage you though. Love ya, Carla How awful, don’t let it discourage you though. Love ya, Carla

]]> By: Dan Striker http://cancercaw.com/blog/family-friends/md-anderson-part-2/comment-page-1/#comment-189 Dan Striker Tue, 19 Jan 2010 13:58:24 +0000 http://cancercaw.com/blog/?p=612#comment-189 help on the way. i will start calling everyone that we know and alert them to this note. Stay Positive. Stay Strong. you are not alone. love dan help on the way. i will start calling everyone that we know and alert them to this note. Stay Positive. Stay Strong. you are not alone.

love dan

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