Comments on: Turn It Down- on steroids, refocusing on support http://cancercaw.com/blog/pain-mgmt/turn-it-down-on-steroids-refocusing-on-support/ Morgan's blog about cancer, chemotherapy and where to go from here. Wed, 22 Sep 2010 16:00:29 +0000 http://wordpress.org/?v=2.9.1 hourly 1 By: Kristin http://cancercaw.com/blog/pain-mgmt/turn-it-down-on-steroids-refocusing-on-support/comment-page-1/#comment-33 Kristin Wed, 19 Aug 2009 20:28:11 +0000 http://cancercaw.com/blog/?p=284#comment-33 Hi Morgan, My name is Kristin. I'm recently undergoing treatment for Hodgkin's disease. This is a recurrence for me as I was originally cancer free back in Dec. Anyhow I just wanted to tell you I think your blog is great! You have a great writing style. After reading this post I just had to share some advice on how to get thru the dex. As you've already figured out dex is THE DEVIL in disguise! It does wonders for nausea but everything else about it is lets just say less then pleasant. When I first started on it they had me on this ridiculously HUGE dose. The come down was horrible. Luckily my docs are really good about working with me and I actually talked them into giving me half of the dose protocol calls for. If my dose is too high my cheeks get flushed and I get hot flashes. And then the appetite increase kicks in. Seriously, you can set me up with two shovels at the grocery store and it still wouldn't be enough to get in my mouth. Then there is the constipation. Now if that just isn't a carnival ride that leaves you less then green I don't know what is. Just thinking of it brings back memories of gripping vanities or he wall to braced myself for what was to come (sorry if this too graphic but you have no idea how much I feel your pain.) So my advice is load up on the stool softeners with your dex. Trust me you'll thank yourself later. I've started my own blog if you're interested at www.lymphoma-sodes.blogspot.com. I wish you the absolute very best on your journey and keep writing! Kristin Hi Morgan, My name is Kristin. I’m recently undergoing treatment for Hodgkin’s disease. This is a recurrence for me as I was originally cancer free back in Dec. Anyhow I just wanted to tell you I think your blog is great! You have a great writing style.

After reading this post I just had to share some advice on how to get thru the dex. As you’ve already figured out dex is THE DEVIL in disguise! It does wonders for nausea but everything else about it is lets just say less then pleasant. When I first started on it they had me on this ridiculously HUGE dose. The come down was horrible. Luckily my docs are really good about working with me and I actually talked them into giving me half of the dose protocol calls for.

If my dose is too high my cheeks get flushed and I get hot flashes. And then the appetite increase kicks in. Seriously, you can set me up with two shovels at the grocery store and it still wouldn’t be enough to get in my mouth.

Then there is the constipation. Now if that just isn’t a carnival ride that leaves you less then green I don’t know what is. Just thinking of it brings back memories of gripping vanities or he wall to braced myself for what was to come (sorry if this too graphic but you have no idea how much I feel your pain.) So my advice is load up on the stool softeners with your dex. Trust me you’ll thank yourself later.

I’ve started my own blog if you’re interested at http://www.lymphoma-sodes.blogspot.com.

I wish you the absolute very best on your journey and keep writing!

Kristin

]]> By: Melissa http://cancercaw.com/blog/pain-mgmt/turn-it-down-on-steroids-refocusing-on-support/comment-page-1/#comment-32 Melissa Tue, 18 Aug 2009 21:57:04 +0000 http://cancercaw.com/blog/?p=284#comment-32 I love it when you write and especially when you are raw and real in what you are experiencing. It's good to know where you are at and what you are feeling.... keep it coming. We love you and want to be here for you. Thank you for choosing to fight and press through the rough times. We KNOW the REAL YOU and your heart. Press on~ we're with you and we've got your back! I love it when you write and especially when you are raw and real in what you are experiencing. It’s good to know where you are at and what you are feeling…. keep it coming.

We love you and want to be here for you. Thank you for choosing to fight and press through the rough times. We KNOW the REAL YOU and your heart. Press on~ we’re with you and we’ve got your back!

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